For Patients / Caregivers
Patients
- Be careful with web resources… "Will You Walk into My Parlor,' Said the Spider to the Fly…": Avoiding Traps When Searching for Information on the Web… Darren Starmer, JCE 2010; 25: 140-141
- ACS: American Cancer Society
- Asbestos.com
The leading Mesothelioma cancer resource - Canadian Virtual Hospice
The Canadian Virtual Hospice provides support and personalized information about palliative and end-of-life care to patients, family members, health care providers, researchers and educators. - Mesothelioma Web
A comprehensive website on asbestos and mesothelioma providing information and support to those who have been exposed to asbestos. - ASCO: Cancer.net
- COH: City of Hope Pain & Palliative Care Resource Center
A clearinghouse to disseminate information and resources to assist others in improving the quality of pain management and end of life care. - ESMO Guide: "How to Get the Most out of Your Oncologist: a Guide for Patients with Advanced Cancer" (PDF 2 MB)
For patients and their family members, it provides practical advice regarding cancer care, communicating with oncologists, important questions to ask, getting information and the challenges of living with an advanced cancer. For practising oncologists, the guide will serve as a tool to help focus important discussions with their patients and to assist in addressing the many issues their patients are confronting. - Investigations at the Edge of Life, Dallas Morning News.
Excellent 5 part narrative of articles, videos, photos about patient/family stories relating to palliative care - NCI: National Cancer Institute
- Chemotherapy and You:
Information about what to expect during chemotherapy and what patients can do to take care of themselves during and after treatment. - Coping with Advanced Cancer:
Information for people with cancer for whom a cure or long-term remission is no longer likely. Topics include physical issues, emotional issues, and living the rest of life to the fullest and with meaning. - Pain Control:
A booklet for cancer patients that addresses pain control medicines and methods, as well as the physical and emotional effects of pain. - Radiation Therapy and You:
Information about what to expect during radiation therapy, including the general effects of treatment and how to deal with specific side effects. - Supportive and Palliative Care:
Managing physical, emotional, and lifestyle effects of cancer and treatment on patients and families; also includes information on finances, insurance, and healthcare services. - Taking Time:
Information that addresses the feelings and concerns of people with cancer and their families. - Support for People with Cancer (English version (2.1 MB)) (Spanish version (1.6 MB))
- Chemotherapy and You:
- Growthhouse.Org
A site with many links about death with dignity, appropriate for families and patients - NHS Direct
NHS Direct is here to make a difference to the lives of people in England, 24 hours a day, 365 days a year - PalliativeDoctors.org
Information about palliative medicine and the role of palliative doctors from the American Academy for Hospice and Palliative Medicine. - Thinking Ahead: My Life at the End
A resource for people with developmental disabilities to advocate for themselves and stay in control of their lives through the end of their lives. Open access. PDFs available in Chinese, English, Korean, Spanish
Caregivers
- Before I Die
Excellent video series about decision-making and issues at end of life. - Canadian Virtual Hospice
The Canadian Virtual Hospice provides support and personalized information about palliative and end-of-life care to patients, family members, health care providers, researchers and educators. - Caring Connections a program of the National Hospice and Palliative Care Organization (NHPCO)
A community engagement initiative to improve care at the end of life. - End of life: Caring for your dying loved one
- Family Caregiver Alliance, National Center on Caregiving
Information to support and sustain family care-giving to those with chronic illnesses - HospiceNet.org
Links to find a hospice, about being a patient or caregiver, bereavement - Help the Hospices: Palliative Care Toolkit
Excellent Handbook for Palliative Care and Hospice Services, with an International focus. Developed by Help the Hospices.org. Will serve nurses, physicians, and other caregivers, including patients and families. Goes through ‘developing a program’ to ‘delivering services’ and evaluating outcomes. Highly recommended. - MayoClinic.com: End of Life Care
- Infant death: Grief and the path of loving remembrance.
A Mayo Clinic psychologist offers parents insight and hope. - End of life: Caring for your dying loved one
- Infant death: Grief and the path of loving remembrance.
- links to find a hospice, about being a patient or caregiver, bereavement
Nursing Homes, Hospices and End-of-Life Resources
Help us to expand the resources on this site quickly.
Please send your suggestions to
Technical Issues? Contact gdraeger@sweetthursdayweb.com
Page Last Modified: Thu Sep 15 2011