Welcome to IPCRC.NET

IPCRC.net, the International Palliative Care Resource Center is dedicated to:

  • Making palliative care resources accessible for health care professionals
  • Building palliative care capacity worldwide
  • Providing a dynamic and constantly expanding website read more...close

Here you will find:

  • An extensive array of palliative care resources including comfort, supportive, hospice, end-of-life, terminal and bereavement care.
  • A design based on the Conceptual Framework of Palliative Care and the World Health Organization (WHO) Strategy for developing palliative care capacity.

Why use IPCRC.net?

  • Educational: Use the buttons in the Table of Contents to access the information you want.
  • Informative: Each link has a brief overview of the content at each website.
  • Fast: Downloads quickly even on a slow telephone connection.

We welcome your suggestions for new resources. Send your suggestions for new resources to .

Technical Issues? Contact gdraeger@sweetthursdayweb.com

Treat the Pain / LIFE Before Death

View, share, engage, discuss, learn about…

16. 'Pain in China'
16. Pain in China
There is a widespread cultural fear of the use of opioids in China and other parts of Asia. Pain is often treated with a variety of traditional Chinese medicine techniques rather than with essential medicines.

Read Overview / View the Archived Videos

Barry Ashpole's Media Watch 735: Holding hope for patients with serious illness

Conversely, clinicians may be concerned when patients have unrealistic hopes for cure or a longer life; they may perceive a need to correct their patients' hopes to enable more informed decision-making. This tension presents a dilemma: How can clinicians help patients hold onto hope? Should hope be protected, even when being hopeful is unrealistic? Or should clinicians risk a loss of hope to ensure that patients understand their prognosis? These may be the wrong questions. Full text: view source »

Not dying alone: The need to democratize hospital visitation policies during COVID-19

MEDICAL LAW REVIEW | Online – 13 September 2021 – Of the many adverse outcomes that may result from the spread of … COVID-19, one stands out as particularly vile: the experience of dying alone. Many healthcare facilities in the U.S. and elsewhere adopted ‘No-Visitor Rules' in an effort to contain the virus, but these rules mean that the countless people in nursing homes and hospital wards were isolated during their final hours of life. There is no epidemiological or U.S. federal or state requirement to prohibit visitation to (and thereby isolate) dying patients – even those with COVID-19. Instead, constructing pandemic-specific visitation policies is usually left to the discretion of hospitals and healthcare providers. Such policies aim to limit the risk of exposure, but fail to account for the individual and social costs associated with dying alone for patients, families, and frontline healthcare workers. As a result, the policies may be overly restrictive and actively cause harm. This article argues that U.S. hospital visitation policies need to be democratised to include the perspectives of community members and patients. By drawing on existing patient rights frameworks, this article outlines several legal strategies to reconceptualise hospital visitation policies as a civil rights issue. Full text: view source »

The impact of poverty and deprivation at the end of life: A critical review

PALLIATIVE CARE & SOCIAL PRACTICE | Online – 12 September 2021 – This critical review interrogates what we know about how poverty and deprivation impact people at the end of life (EoL) and what more we need to uncover. While we know that people in economically resource-rich countries who experience poverty and deprivation over the life course are likely to die younger, with increased co-morbidities, palliative care (PC) researchers are beginning to establish a full picture of the disproportionate impact of poverty on how, when and where we die. This is something the COVID-19 pandemic has further illustrated. The authors use a critical social science lens to investigate an eclectic range of literature addressing health inequities and is focused on poverty and deprivation at the EoL. The authors' aim was to see if we could shed new light on the myriad ways in which experiences of poverty shape the end of people's lives. They start by exploring the definitions and language of poverty while acknowledging the multiple intersecting identities that produce privilege … [and] … discuss poverty and deprivation as a context for the nature of PC need and overall EoL circumstances. In particular, the authors explore: total pain; choice at the EoL; access to PC; and, family caregiving. Overall, they argue that in addressing the effects of poverty and deprivation on EoL experiences, there is a need to recognise not just socio-economic injustice but also cultural and symbolic injustice. Too often, a deficit-based approach is adopted which both "others" those living with poverty and renders invisible the strategies and resilience they develop to support themselves, their families and communities. The authors conclude with recommendations for future research, highlighting in particular the need to amplify the voices of people with lived experience of poverty regarding palliative and EoL care. Full text: view source »

Download the complete issue (PDF 850 KB)

Review the 'Global Palliative Care News' Archive »

Read "Behind the Scenes: Media Watch by Barry Ashpole" »


Crossroads of Grief Project -- Grieving or Bereaved Children: Literature Review (2015-2018)

The Children & Youth Grief Network of Peel Region (in Ontario, Canada) recently published a review of the literature focused on the many different aspects of grief and bereavement among children and young people. The main focus is on the evidence-based studies published in peer-reviewed journals, reflecting current thinking on the many issues identified. You can download/view an overview of the literature (PDF .8 MB) or the full literature review (PDF .8 MB).


Always Changing

Media Watch

EPERC Fast Facts: What's New (open access)
Review the latest EPERC Fast Facts; access all the Fast Facts

JCO Art of Oncology (open access)
New articles posted monthly… also read this special article:

Download

ELNEC Curricula in Russian and Spanish

  • contact Pam Malloy at for the English version

EPEC-Oncology Curriculum in English


Review the 'New on IPCRC.net' Archive »

New on IPCRC.net


WHO: Noncommunicable diseases country profiles 2011
The noncommunicable diseases (NCDs) situation in 193 countries

ESMO Guide: "How to Get the Most out of Your Oncologist: a Guide for Patients with Advanced Cancer" (PDF 2 MB)
For patients and their family members, it provides practical advice regarding cancer care, communicating with oncologists, important questions to ask, getting information and the challenges of living with an advanced cancer. For practicing oncologists, the guide will serve as a tool to help focus important discussions with their patients and to assist in addressing the many issues their patients are confronting.

I Was Sick and You Cared for Me: a Church-based Response to Palliative Care in Tanzania
A report of a two-year pilot project led by international NGO Tearfund, with support from the Diana Princess of Wales Memorial Fund, to introduce palliative care into the hospitals and remote communities of Tanzania's lake zone, in the north of the country. (PDF 946KB)

Palliative Care Development in Africa: How Can We Provide Enough Quality Care? R A Powell, F N Mwangi-Powell, F Kiyange, L Radbruch, R Harding. BMJ Support Palliat Care 2011;1:113-114

Thinking Ahead: My Life at the End
A resource for people with developmental disabilities to advocate for themselves and stay in control of their lives through the end of their lives. Open access. PDFs available in Chinese, English, Korean, Spanish

Pain Code: Get Pain Under Control Quickly, Charles von Gunten, Provost, the Institute for Palliative Medicine at San Diego Hospice on Medscape
How to get the pain under control quickly when there's a pain crisis.

Palliative Care: What Approaches are Suitable in Developing Countries? By Henry Ddungu, MD, Uganda, in the British Journal of Haematology 2011; 154(6): 728–735. PMID: 21707576.

Balsam: The Lebanese Center for Palliative Care
A non-governmental organization that works to relieve patient suffering and improve quality of life.

Variation between End-of-Life Health Care Costs in Los Angeles and San Diego: Why are They so Different? Kaplan RM. J Palliat Med. 2011 Feb;14(2):215-20. PMID: 21314574 Open Access.
Medical care, particularly at the end of life, is significantly more expensive in Los Angeles (LA) (> US $43,000 in the last 2 years of life) than in San Diego (< US $29,000), yet quality measures tend to favor in San Diego. Non-emergent hospital admissions and inpatient care at the end of life are important contributors to the cost differences. There is little reason to believe that the greater spending for health care in LA results in better patient outcomes

Early Palliative Care for Patients with Metastatic Non-Small-Cell Lung Cancer. Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF, Billings JA, Lynch TJ. N Engl J Med. 2010 Aug 19;363(8):733-42. PMID: 20818875 Open Access.
Among patients with metastatic non-small-cell lung cancer, early palliative care led to significant improvements in both quality of life and mood. As compared with patients receiving standard care, patients receiving early palliative care had less aggressive care at the end of life but longer survival.

ACS: American Cancer Society International Fellowships for Beginning Investigators (ACSBI), Application Deadline November 01, 2011
The ACSBI fellowship emphasizes the transfer of knowledge from the host institute to others at the home institute. It offers the fellow the opportunity to be mentored by experts in the chosen field, receive hands on experience in clinical, behavioural or basic research, intellectual stimulation, research guidance, narrative transfer and many other opportunities to evolve scientifically and academically.

APCA: Special report on Palliative Care by the Africa Health Magazine supported by the Diana Fund (PDF 7.3MB)

Frank D. Ferris presents Goals and Challenges of Palliative Care on UCSD TV

Frank D. Ferris discusses Palliative Care on CFAX Canadian Radio (audio only)

Freedom from Pain, Al Jazeera TV, July 20, 2011

For many in the West pain ends with a pill, but elsewhere the war on drugs is cutting people off from pain medication.

Global Task Force on Expanded Access to Cancer Care and Control

An initiative convened by the Harvard Global Equity Initiative, the Harvard Medical School, the Harvard School of Public Health and the Dana-Farber Cancer Institute to design, implement and evaluate innovative, multi-stakeholder strategies for expanding access to cancer prevention, detection and care.

Hospice Palliative Care Association of South Africa Congress, August 2011

View videos of the congress presentations

Human Rights Watch: Ukraine: Uncontrolled Pain Ukraine's Obligation to Ensure Evidence-Based

This 93-page report describes Ukrainian government policies that make it impossible for cancer patients living in rural areas to get essential pain medications.

IOM Report: Relieving Pain in America: A Blueprint for Transforming Prevention, Care, Education, and Research (open access)

In this report, the IOM offers a blueprint for action in transforming prevention, care, education, and research, with the goal of providing relief for people with pain in America.

Kenya National Cancer Control Strategy 2011-2016 published in August 2011 (PDF 650KB)

The Lancet: Managing pain effectively, 25 June 2011; 377 (9784):2151 (open access)

An overview of The Lancet's new clinical Series focusing on treatments for postoperative, chronic non-cancer, and chronic cancer pain.

MECC: Can We Overcome the Effect of Conflicts in Rendering Palliative Care? An Introduction to the Middle Eastern Cancer Consortium (MECC) Current Oncology Reports 2011; 13 (4): 302-307, PMID: 21538041

"Pawsitive Pals"

A video highlighting San Diego Hospice's Pet Therapy Program

Republic of Georgia Updates

Watch several recent videos on palliative care; download the 2011-2015 Strategic Plan for Palliative Care

Stop Torture in Health Care, Open Society Foundations

The severity of the pain experienced by patients denied pain relief can be as great or greater than that of traditional torture techniques, and it can last longer. Although not acting out of malice, health workers and policymakers restrict access to pain medicines for inappropriate reasons such as exaggerated fears of addiction, failure to educate or train physicians in palliative care, arbitrary regulations on morphine-derived substances, and preoccupation with drug control rather than concern for people with pain.

Strategic Planning Summit for the Advancement of Pain and Palliative Care Pharmacy

The Summit was developed by a multidisciplinary advisory board including pharmacists, physicians and nurses to examine the education and development of pharmacists on pain and palliative care across the entire professional continuum.

Switzerland: National Cancer Program 2005 – 2010

Incorporating palliative care…PDFs available in French, German and English.

Wolfson International Bursaries 2011, Help the Hospices

This grant programme aims to increase and improve the provision of palliative care in commonwealth resource-poor countries.

5 Stories: highlights San Diego Hospice and The Institute for Palliative Medicine

Review the 'New on IPCRC.net' Archive »


IPM International Program Partners

The International Programs at the Institute for Palliative Medicine at San Diego Hospice is delighted to have many partners in our international work.

Review all our Partners

Funding Partners

The Office of International Affairs, National Cancer Institute, Bethesda, Maryland, USA OIA: Office of International Affairs, National Cancer Institute, Bethesda, Maryland
Open Society Foundations IPCI: International Palliative Care Initiative, Public Health Networks,
Open Society Foundations, New York
Diana, Princess of Wales Memorial Fund Diana Fund: The Diana, Princess of Wales Memorial Fund, London, UK
IAHPC: International Association for Hospice and Palliative Care IAHPC: International Association for Hospice and Palliative Care

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Page Last Modified: Sun Mar 22 2020