Welcome to IPCRC.NET

IPCRC.net, the International Palliative Care Resource Center is dedicated to:

  • Making palliative care resources accessible for health care professionals
  • Building palliative care capacity worldwide
  • Providing a dynamic and constantly expanding website read more...close

Here you will find:

  • An extensive array of palliative care resources including comfort, supportive, hospice, end-of-life, terminal and bereavement care.
  • A design based on the Conceptual Framework of Palliative Care and the World Health Organization (WHO) Strategy for developing palliative care capacity.

Why use IPCRC.net?

  • Educational: Use the buttons in the Table of Contents to access the information you want.
  • Informative: Each link has a brief overview of the content at each website.
  • Fast: Downloads quickly even on a slow telephone connection.

We welcome your suggestions for new resources. Send your suggestions for new resources to .

Technical Issues? Contact gdraeger@sweetthursdayweb.com

Treat the Pain / LIFE Before Death

View, share, engage, discuss, learn about…

16. 'Pain in China'
16. Pain in China
There is a widespread cultural fear of the use of opioids in China and other parts of Asia. Pain is often treated with a variety of traditional Chinese medicine techniques rather than with essential medicines.

Read Overview / View the Archived Videos

Barry Ashpole's Media Watch 667:

Economics of palliative and end-of-life care

Equity and the financial costs of informal caregiving in palliative care: A critical debate

Costs can be broadly categorised into three main areas: 1) Work related costs (costs related to changes in employment); 2) Carer time costs (cost related to time investment required by carers); and, 3) Out-of-pocket costs (direct outlays of money). A 2015 qualitative study of bereaved carers confirmed that the costs of caring at the EoL are significant and include a range of both direct (e.g., transport, food, medication) and indirect costs (e.g., related to employment, carer time, carer health). The palliative care context was also found to increase costs, as meeting the ill person's needs was prioritised over cost. Over recent years a growing number of international studies have confirmed that the financial costs of caring are a serious issue across the developed world. Furthermore, evidence suggests that informal carers make a huge financial contribution to the wider healthcare system, with studies estimating that informal caregiving accounts for up to 70% of total health care costs. Full text: view source »

The healthcare cost of palliative care for cancer patients: A systematic review

SUPPORTIVE CARE IN CANCER | Online – 21 May 2020 – Several delivery models of palliative care (PC) are currently available: hospital-based, outpatient-based, home-based, nursing home-based, and hospice-based. Weighing the differences in costs of these delivery models helps to advise on the future direction of expanding PC services. The objective of this review is to identify and summarize the best available evidence in the U.S. on cost associated with PC for patients diagnosed with cancer. The initial search identified 748 articles, of which 16 met the inclusion criteria. Eight studies (50%) were inpatient-based, four (25%) were combined outpatient/inpatient, two (12.5%) reported only on home-based palliative services, and two (12.5%) were in multiple settings. Most included studies showed that PC reduced the cost of healthcare by $1,285-$20,719 for inpatient PC, $1,000-$5,198 for outpatient and inpatient combined, $4,258 for home-based, and $117-$400 per day for home/hospice, combined outpatient/inpatient PC. Receiving PC after a cancer diagnosis was associated with lower costs for cancer patients, and remarkable differences exist in cost saving across different PC models. Abstract (w. list of references): view source »

Pediatric advance care planning

Congruence gaps between adolescents with cancer and their families regarding values, goals, and beliefs about end-of-life care

JAMA NETWORK OPEN | Online – 19 May 2020 – Families had a poor understanding of their adolescent's values regarding their own end-of-life (EoL) care with respect to when to initiate EoL conversations and preference for being off machines that extend life, if dying. Pediatric advance care planning could minimize these misunderstandings, potentially affecting the broader domain of clinical practice guidelines for quality palliative care. Access to pediatric advance care planning to increase congruence for interested and ready adolescent-family dyads may be more beneficial than simply asking adolescents about their EoL treatment preferences by helping families with the burdens of making EoL decisions, ensuring that adolescents' preferences are heard, and opening up conversations on topics that both the adolescent and family member may be thinking about, but avoiding. Ultimately, what is at stake here is excessive and unwanted treatment, leading to unnecessary and avoidable suffering. Full text: view source »

Download the complete issue (PDF 525 KB)

Review the 'Global Palliative Care News' Archive »

Read "Behind the Scenes: Media Watch by Barry Ashpole" »


Crossroads of Grief Project -- Grieving or Bereaved Children: Literature Review (2015-2018)

The Children & Youth Grief Network of Peel Region (in Ontario, Canada) recently published a review of the literature focused on the many different aspects of grief and bereavement among children and young people. The main focus is on the evidence-based studies published in peer-reviewed journals, reflecting current thinking on the many issues identified. You can download/view an overview of the literature (PDF .8 MB) or the full literature review (PDF .8 MB).


Always Changing

Media Watch

EPERC Fast Facts: What's New (open access)
Review the latest EPERC Fast Facts; access all the Fast Facts

JCO Art of Oncology (open access)
New articles posted monthly… also read this special article:

Download

ELNEC Curricula in Russian and Spanish

  • contact Pam Malloy at for the English version

EPEC-Oncology Curriculum in English


Review the 'New on IPCRC.net' Archive »

New on IPCRC.net


WHO: Noncommunicable diseases country profiles 2011
The noncommunicable diseases (NCDs) situation in 193 countries

ESMO Guide: "How to Get the Most out of Your Oncologist: a Guide for Patients with Advanced Cancer" (PDF 2 MB)
For patients and their family members, it provides practical advice regarding cancer care, communicating with oncologists, important questions to ask, getting information and the challenges of living with an advanced cancer. For practicing oncologists, the guide will serve as a tool to help focus important discussions with their patients and to assist in addressing the many issues their patients are confronting.

I Was Sick and You Cared for Me: a Church-based Response to Palliative Care in Tanzania
A report of a two-year pilot project led by international NGO Tearfund, with support from the Diana Princess of Wales Memorial Fund, to introduce palliative care into the hospitals and remote communities of Tanzania's lake zone, in the north of the country. (PDF 946KB)

Palliative Care Development in Africa: How Can We Provide Enough Quality Care? R A Powell, F N Mwangi-Powell, F Kiyange, L Radbruch, R Harding. BMJ Support Palliat Care 2011;1:113-114

Thinking Ahead: My Life at the End
A resource for people with developmental disabilities to advocate for themselves and stay in control of their lives through the end of their lives. Open access. PDFs available in Chinese, English, Korean, Spanish

Pain Code: Get Pain Under Control Quickly, Charles von Gunten, Provost, the Institute for Palliative Medicine at San Diego Hospice on Medscape
How to get the pain under control quickly when there's a pain crisis.

Palliative Care: What Approaches are Suitable in Developing Countries? By Henry Ddungu, MD, Uganda, in the British Journal of Haematology 2011; 154(6): 728–735. PMID: 21707576.

Balsam: The Lebanese Center for Palliative Care
A non-governmental organization that works to relieve patient suffering and improve quality of life.

Variation between End-of-Life Health Care Costs in Los Angeles and San Diego: Why are They so Different? Kaplan RM. J Palliat Med. 2011 Feb;14(2):215-20. PMID: 21314574 Open Access.
Medical care, particularly at the end of life, is significantly more expensive in Los Angeles (LA) (> US $43,000 in the last 2 years of life) than in San Diego (< US $29,000), yet quality measures tend to favor in San Diego. Non-emergent hospital admissions and inpatient care at the end of life are important contributors to the cost differences. There is little reason to believe that the greater spending for health care in LA results in better patient outcomes

Early Palliative Care for Patients with Metastatic Non-Small-Cell Lung Cancer. Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF, Billings JA, Lynch TJ. N Engl J Med. 2010 Aug 19;363(8):733-42. PMID: 20818875 Open Access.
Among patients with metastatic non-small-cell lung cancer, early palliative care led to significant improvements in both quality of life and mood. As compared with patients receiving standard care, patients receiving early palliative care had less aggressive care at the end of life but longer survival.

ACS: American Cancer Society International Fellowships for Beginning Investigators (ACSBI), Application Deadline November 01, 2011
The ACSBI fellowship emphasizes the transfer of knowledge from the host institute to others at the home institute. It offers the fellow the opportunity to be mentored by experts in the chosen field, receive hands on experience in clinical, behavioural or basic research, intellectual stimulation, research guidance, narrative transfer and many other opportunities to evolve scientifically and academically.

APCA: Special report on Palliative Care by the Africa Health Magazine supported by the Diana Fund (PDF 7.3MB)

Frank D. Ferris presents Goals and Challenges of Palliative Care on UCSD TV

Frank D. Ferris discusses Palliative Care on CFAX Canadian Radio (audio only)

Freedom from Pain, Al Jazeera TV, July 20, 2011

For many in the West pain ends with a pill, but elsewhere the war on drugs is cutting people off from pain medication.

Global Task Force on Expanded Access to Cancer Care and Control

An initiative convened by the Harvard Global Equity Initiative, the Harvard Medical School, the Harvard School of Public Health and the Dana-Farber Cancer Institute to design, implement and evaluate innovative, multi-stakeholder strategies for expanding access to cancer prevention, detection and care.

Hospice Palliative Care Association of South Africa Congress, August 2011

View videos of the congress presentations

Human Rights Watch: Ukraine: Uncontrolled Pain Ukraine's Obligation to Ensure Evidence-Based

This 93-page report describes Ukrainian government policies that make it impossible for cancer patients living in rural areas to get essential pain medications.

IOM Report: Relieving Pain in America: A Blueprint for Transforming Prevention, Care, Education, and Research (open access)

In this report, the IOM offers a blueprint for action in transforming prevention, care, education, and research, with the goal of providing relief for people with pain in America.

Kenya National Cancer Control Strategy 2011-2016 published in August 2011 (PDF 650KB)

The Lancet: Managing pain effectively, 25 June 2011; 377 (9784):2151 (open access)

An overview of The Lancet's new clinical Series focusing on treatments for postoperative, chronic non-cancer, and chronic cancer pain.

MECC: Can We Overcome the Effect of Conflicts in Rendering Palliative Care? An Introduction to the Middle Eastern Cancer Consortium (MECC) Current Oncology Reports 2011; 13 (4): 302-307, PMID: 21538041

"Pawsitive Pals"

A video highlighting San Diego Hospice's Pet Therapy Program

Republic of Georgia Updates

Watch several recent videos on palliative care; download the 2011-2015 Strategic Plan for Palliative Care

Stop Torture in Health Care, Open Society Foundations

The severity of the pain experienced by patients denied pain relief can be as great or greater than that of traditional torture techniques, and it can last longer. Although not acting out of malice, health workers and policymakers restrict access to pain medicines for inappropriate reasons such as exaggerated fears of addiction, failure to educate or train physicians in palliative care, arbitrary regulations on morphine-derived substances, and preoccupation with drug control rather than concern for people with pain.

Strategic Planning Summit for the Advancement of Pain and Palliative Care Pharmacy

The Summit was developed by a multidisciplinary advisory board including pharmacists, physicians and nurses to examine the education and development of pharmacists on pain and palliative care across the entire professional continuum.

Switzerland: National Cancer Program 2005 – 2010

Incorporating palliative care…PDFs available in French, German and English.

Wolfson International Bursaries 2011, Help the Hospices

This grant programme aims to increase and improve the provision of palliative care in commonwealth resource-poor countries.

5 Stories: highlights San Diego Hospice and The Institute for Palliative Medicine

Review the 'New on IPCRC.net' Archive »


IPM International Program Partners

The International Programs at the Institute for Palliative Medicine at San Diego Hospice is delighted to have many partners in our international work.

Review all our Partners

Funding Partners

The Office of International Affairs, National Cancer Institute, Bethesda, Maryland, USA OIA: Office of International Affairs, National Cancer Institute, Bethesda, Maryland
Open Society Foundations IPCI: International Palliative Care Initiative, Public Health Networks,
Open Society Foundations, New York
Diana, Princess of Wales Memorial Fund Diana Fund: The Diana, Princess of Wales Memorial Fund, London, UK
IAHPC: International Association for Hospice and Palliative Care IAHPC: International Association for Hospice and Palliative Care

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Page Last Modified: Sun Mar 22 2020