Welcome to IPCRC.NET

IPCRC.net, the International Palliative Care Resource Center is dedicated to:

  • Making palliative care resources accessible for health care professionals
  • Building palliative care capacity worldwide
  • Providing a dynamic and constantly expanding website read more...close

Here you will find:

  • An extensive array of palliative care resources including comfort, supportive, hospice, end-of-life, terminal and bereavement care.
  • A design based on the Conceptual Framework of Palliative Care and the World Health Organization (WHO) Strategy for developing palliative care capacity.

Why use IPCRC.net?

  • Educational: Use the buttons in the Table of Contents to access the information you want.
  • Informative: Each link has a brief overview of the content at each website.
  • Fast: Downloads quickly even on a slow telephone connection.

We welcome your suggestions for new resources. Send your suggestions for new resources to .

Technical Issues? Contact gdraeger@sweetthursdayweb.com

Treat the Pain / LIFE Before Death

View, share, engage, discuss, learn about…

16. 'Pain in China'
16. Pain in China
There is a widespread cultural fear of the use of opioids in China and other parts of Asia. Pain is often treated with a variety of traditional Chinese medicine techniques rather than with essential medicines.

Read Overview / View the Archived Videos

Barry Ashpole's Media Watch 635: Involving consumers with palliative care needs and their families in research: A case study

Analysis of documented feedback led to four key areas of protocol change: 1) Getting the language in the recruitment materials and information and consent forms right; 2) Developing a feasible and acceptable recruitment strategy; 3) Opportunities to more clearly articulate the explicit value of this research for patients and families; and 4) Support strategies for participants. Authentic consumer engagement requires time and effort; however, the outcomes are well worth the invested time and energy. Key foci outlined within this case study to enhance authenticity included: collaboration; preferencing the consumer voice; adequate preparation to support consumer engagement; and openness to all feedback provided. Co-designing research with consumers enabled the outcome to be feasible for implementation, without any modifications required. Ensuring relevance and consumer centredness for the expanding palliative care evidence base is essential and can only be achieved through meaningful partnerships with consumer representatives. Abstract: view source »

The AMBER care bundle for hospital inpatients with uncertain recovery nearing the end of life: The ImproveCare feasibility cluster randomized controlled trial

HEALTH TECHNOLOGY ASSESSMENT, 2019;23(55):1-150. Unwell hospital patients who are approaching the end of their lives and may die at any moment receive inconsistent care and often do not have opportunities to discuss their future care preferences. The AMBER (Assessment; Management; Best practice; Engagement; Recovery uncertain) care bundle was developed to help identify such patients, train healthcare professionals to better communicate their concerns with them and their families and, where possible, to realise their preferences for place of care and death. The AMBER care bundle … aims to provide better outcomes for patients with clinically uncertain recovery and their families. It is important that the AMBER care bundle is properly investigated before wider use. A bigger study of the AMBER care bundle would be complex and expensive, so the authors examined whether or not this would be possible and acceptable to patients cared for in four wards across four hospitals, before deciding whether or not to go ahead with this bigger study. Two wards used the care bundle and two did not. The authors interviewed participants, their families and staff, and examined participants' clinical notes. They found that the AMBER care bundle was largely acceptable to patients, relatives and staff, and generally delivered as intended. Group discussions with staff and interviews with participants and relatives identified important changes required to improve the AMBER care bundle and views on how the trial was conducted. These included simplifying the type of patients who may be appropriate for the AMBER care bundle and improving communication training for staff. The AMBER care bundle continues to be used in over 40 hospitals in England. Full text: view source »


82% of charitable hospices [in the U.K.] planning deficit budget this financial year

U.K. (England) | UK Fundraising – 7 October 2019 – Eight out of ten (82%) of charitable hospices surveyed by Hospice UK are planning a deficit budget this financial year according to figures issued by the charity. Hospice UK says funding for the U.K.'s 200 charitable hospices is on a knife-edge and that care for dying people needs to stop being so reliant on local fundraising, pointing out that earlier this year two hospices were forced to close and others have had to cut services or jobs. Last month the government announced a £25 million cash injection for charitable hospices and palliative care providers in England. At the time the Prime Minister also promised to conduct a more detailed review of funding for end-of-life (EoL) care. Hospice UK is now calling on the government to follow through on its earlier commitment and bring this forward. The charity says that funding for the EoL care system as a whole, including hospices, is "broken" and that a sustainable solution needs to be developed urgently, especially to meet fast growing demand for this care. Earlier research by Hospice UK shows that more than 100,000 people are unable to get the support they need at the EoL across all care settings, while more than 40% of care home residents, many of whom have complex needs associated with the EoL, are forced to pay for their care under current rules. view source »

Download the complete issue (PDF 650 KB)

Review the 'Global Palliative Care News' Archive »

Read "Behind the Scenes: Media Watch by Barry Ashpole" »


Crossroads of Grief Project -- Grieving or Bereaved Children: Literature Review (2015-2018)

The Children & Youth Grief Network of Peel Region (in Ontario, Canada) recently published a review of the literature focused on the many different aspects of grief and bereavement among children and young people. The main focus is on the evidence-based studies published in peer-reviewed journals, reflecting current thinking on the many issues identified. You can download/view an overview of the literature (PDF .8 MB) or the full literature review (PDF .8 MB).


Always Changing

Media Watch

EPERC Fast Facts: What's New (open access)
Review the latest EPERC Fast Facts; access all the Fast Facts

JCO Art of Oncology (open access)
New articles posted monthly… also read this special article:

Download

ELNEC Curricula in Russian and Spanish

  • contact Pam Malloy at for the English version

EPEC-Oncology Curriculum in English


Review the 'New on IPCRC.net' Archive »

New on IPCRC.net


WHO: Noncommunicable diseases country profiles 2011
The noncommunicable diseases (NCDs) situation in 193 countries

ESMO Guide: "How to Get the Most out of Your Oncologist: a Guide for Patients with Advanced Cancer" (PDF 2 MB)
For patients and their family members, it provides practical advice regarding cancer care, communicating with oncologists, important questions to ask, getting information and the challenges of living with an advanced cancer. For practicing oncologists, the guide will serve as a tool to help focus important discussions with their patients and to assist in addressing the many issues their patients are confronting.

I Was Sick and You Cared for Me: a Church-based Response to Palliative Care in Tanzania
A report of a two-year pilot project led by international NGO Tearfund, with support from the Diana Princess of Wales Memorial Fund, to introduce palliative care into the hospitals and remote communities of Tanzania's lake zone, in the north of the country. (PDF 946KB)

Palliative Care Development in Africa: How Can We Provide Enough Quality Care? R A Powell, F N Mwangi-Powell, F Kiyange, L Radbruch, R Harding. BMJ Support Palliat Care 2011;1:113-114

Thinking Ahead: My Life at the End
A resource for people with developmental disabilities to advocate for themselves and stay in control of their lives through the end of their lives. Open access. PDFs available in Chinese, English, Korean, Spanish

Pain Code: Get Pain Under Control Quickly, Charles von Gunten, Provost, the Institute for Palliative Medicine at San Diego Hospice on Medscape
How to get the pain under control quickly when there's a pain crisis.

Palliative Care: What Approaches are Suitable in Developing Countries? By Henry Ddungu, MD, Uganda, in the British Journal of Haematology 2011; 154(6): 728–735. PMID: 21707576.

Balsam: The Lebanese Center for Palliative Care
A non-governmental organization that works to relieve patient suffering and improve quality of life.

Variation between End-of-Life Health Care Costs in Los Angeles and San Diego: Why are They so Different? Kaplan RM. J Palliat Med. 2011 Feb;14(2):215-20. PMID: 21314574 Open Access.
Medical care, particularly at the end of life, is significantly more expensive in Los Angeles (LA) (> US $43,000 in the last 2 years of life) than in San Diego (< US $29,000), yet quality measures tend to favor in San Diego. Non-emergent hospital admissions and inpatient care at the end of life are important contributors to the cost differences. There is little reason to believe that the greater spending for health care in LA results in better patient outcomes

Early Palliative Care for Patients with Metastatic Non-Small-Cell Lung Cancer. Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF, Billings JA, Lynch TJ. N Engl J Med. 2010 Aug 19;363(8):733-42. PMID: 20818875 Open Access.
Among patients with metastatic non-small-cell lung cancer, early palliative care led to significant improvements in both quality of life and mood. As compared with patients receiving standard care, patients receiving early palliative care had less aggressive care at the end of life but longer survival.

ACS: American Cancer Society International Fellowships for Beginning Investigators (ACSBI), Application Deadline November 01, 2011
The ACSBI fellowship emphasizes the transfer of knowledge from the host institute to others at the home institute. It offers the fellow the opportunity to be mentored by experts in the chosen field, receive hands on experience in clinical, behavioural or basic research, intellectual stimulation, research guidance, narrative transfer and many other opportunities to evolve scientifically and academically.

APCA: Special report on Palliative Care by the Africa Health Magazine supported by the Diana Fund (PDF 7.3MB)

Frank D. Ferris presents Goals and Challenges of Palliative Care on UCSD TV

Frank D. Ferris discusses Palliative Care on CFAX Canadian Radio (audio only)

Freedom from Pain, Al Jazeera TV, July 20, 2011

For many in the West pain ends with a pill, but elsewhere the war on drugs is cutting people off from pain medication.

Global Task Force on Expanded Access to Cancer Care and Control

An initiative convened by the Harvard Global Equity Initiative, the Harvard Medical School, the Harvard School of Public Health and the Dana-Farber Cancer Institute to design, implement and evaluate innovative, multi-stakeholder strategies for expanding access to cancer prevention, detection and care.

Hospice Palliative Care Association of South Africa Congress, August 2011

View videos of the congress presentations

Human Rights Watch: Ukraine: Uncontrolled Pain Ukraine's Obligation to Ensure Evidence-Based

This 93-page report describes Ukrainian government policies that make it impossible for cancer patients living in rural areas to get essential pain medications.

IOM Report: Relieving Pain in America: A Blueprint for Transforming Prevention, Care, Education, and Research (open access)

In this report, the IOM offers a blueprint for action in transforming prevention, care, education, and research, with the goal of providing relief for people with pain in America.

Kenya National Cancer Control Strategy 2011-2016 published in August 2011 (PDF 650KB)

The Lancet: Managing pain effectively, 25 June 2011; 377 (9784):2151 (open access)

An overview of The Lancet's new clinical Series focusing on treatments for postoperative, chronic non-cancer, and chronic cancer pain.

MECC: Can We Overcome the Effect of Conflicts in Rendering Palliative Care? An Introduction to the Middle Eastern Cancer Consortium (MECC) Current Oncology Reports 2011; 13 (4): 302-307, PMID: 21538041

"Pawsitive Pals"

A video highlighting San Diego Hospice's Pet Therapy Program

Republic of Georgia Updates

Watch several recent videos on palliative care; download the 2011-2015 Strategic Plan for Palliative Care

Stop Torture in Health Care, Open Society Foundations

The severity of the pain experienced by patients denied pain relief can be as great or greater than that of traditional torture techniques, and it can last longer. Although not acting out of malice, health workers and policymakers restrict access to pain medicines for inappropriate reasons such as exaggerated fears of addiction, failure to educate or train physicians in palliative care, arbitrary regulations on morphine-derived substances, and preoccupation with drug control rather than concern for people with pain.

Strategic Planning Summit for the Advancement of Pain and Palliative Care Pharmacy

The Summit was developed by a multidisciplinary advisory board including pharmacists, physicians and nurses to examine the education and development of pharmacists on pain and palliative care across the entire professional continuum.

Switzerland: National Cancer Program 2005 – 2010

Incorporating palliative care…PDFs available in French, German and English.

Wolfson International Bursaries 2011, Help the Hospices

This grant programme aims to increase and improve the provision of palliative care in commonwealth resource-poor countries.

5 Stories: highlights San Diego Hospice and The Institute for Palliative Medicine

Review the 'New on IPCRC.net' Archive »


IPM International Program Partners

The International Programs at the Institute for Palliative Medicine at San Diego Hospice is delighted to have many partners in our international work.

Review all our Partners

Funding Partners

The Office of International Affairs, National Cancer Institute, Bethesda, Maryland, USA OIA: Office of International Affairs, National Cancer Institute, Bethesda, Maryland
Open Society Foundations IPCI: International Palliative Care Initiative, Public Health Networks,
Open Society Foundations, New York
Diana, Princess of Wales Memorial Fund Diana Fund: The Diana, Princess of Wales Memorial Fund, London, UK
IAHPC: International Association for Hospice and Palliative Care IAHPC: International Association for Hospice and Palliative Care

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Page Last Modified: Sun Jun 30 2019